James Jaragosky
12-20-2008, 12:59 AM
My sister sent me this today. It speaks for it’s self.
Thanks for reading. If this violates the TOS please excuse my Transgression and delete or modify this post as needed.
Jim J.
Most of you already know that our beautiful daughter has epilepsy. Before Katelyn had a seizure I really did not know much about epilepsy, but now our whole family knows more than we want to.
Katelyn had her first seizure in 2003 and it felt like she was dying. We had no idea why at the time, but it really didn't matter she had a seizure. Two years later after a day of fun with friends in Germany she had her first unexplained seizure. We were blessed to be surrounded by God, good friends and wonderful doctors in Germany. It was such a blessing to have Jan at the hospital with us. We were blessed to have Ella in our life. Our church family was such a support and meant so much being so far away from family. The doctor told us that Katelyn was at risk of having more seizures and if she did she most likely had epilepsy. When we moved to Alabama we never thought it would be the start to our realization that our daughter was no longer just having seizures. It took a year, but she had another seizure. We took her to a specialist and he diagnosed her with epilepsy. We did not want to admit she had the big E so we took her to another doctor. Guess what! She diagnosed her with epilepsy.
In the beginning I did not even want to say the word epilepsy and I didn't want to tell people that my daughter had epilepsy. However, what I have found is there is so much unknown and the more people are made aware there is a better chance for cure.
God blessed us with wonderful sisters and brothers in Christ. Katelyn has not only had seizures at home, but also at school. God has blessed us with a loving environment at Mayfair Church of Christ Preschool and Kindergarten Program. Ms. Jenerick is our angel in Christ and has been so supportive of Katelyn during her seizures as school! For the last year Katelyn has been on medication to help stop seizures and at first it was not working well it actually increased her seizures. So in July she began taking two medications and by the grace of God she has had no seizures. Even though she has been seizure free for a few months we never stop thinking about her disease. Every time she goes to bed we listen to see if this will be the time she has another seizure. Katelyn's seizures are very predictable! There is a 70% chance that she will grow out of them and we will not know this until she has passed puberty, but there is a chance she could live with it for the rest of her life.
By you signing this petition it could help fund research to finds ways to not only help Katelyn, but other children as well as adults. There is so much unknown about seizures and epilepsy! Please consider signing. If you check the box you will not receive any other information.
I need to share one thing about what epilepsy has done for our family. It has made our faith grow in Jesus Christ, it has brought our family together, and made us realize that God selected us to be Katelyn and Michaels parents and we are truly blessed. Children our gifts of God no matter if they fit the image of perfection that our society places. I have come to realize that it is the imperfections that make perfection.
http://www.epilepsyfoundation.org/petition/
Many thanks for your support and please continue to help us lead the fight to defeat epilepsy!
Amber
Thanks for reading. If this violates the TOS please excuse my Transgression and delete or modify this post as needed.
Jim J.
Most of you already know that our beautiful daughter has epilepsy. Before Katelyn had a seizure I really did not know much about epilepsy, but now our whole family knows more than we want to.
Katelyn had her first seizure in 2003 and it felt like she was dying. We had no idea why at the time, but it really didn't matter she had a seizure. Two years later after a day of fun with friends in Germany she had her first unexplained seizure. We were blessed to be surrounded by God, good friends and wonderful doctors in Germany. It was such a blessing to have Jan at the hospital with us. We were blessed to have Ella in our life. Our church family was such a support and meant so much being so far away from family. The doctor told us that Katelyn was at risk of having more seizures and if she did she most likely had epilepsy. When we moved to Alabama we never thought it would be the start to our realization that our daughter was no longer just having seizures. It took a year, but she had another seizure. We took her to a specialist and he diagnosed her with epilepsy. We did not want to admit she had the big E so we took her to another doctor. Guess what! She diagnosed her with epilepsy.
In the beginning I did not even want to say the word epilepsy and I didn't want to tell people that my daughter had epilepsy. However, what I have found is there is so much unknown and the more people are made aware there is a better chance for cure.
God blessed us with wonderful sisters and brothers in Christ. Katelyn has not only had seizures at home, but also at school. God has blessed us with a loving environment at Mayfair Church of Christ Preschool and Kindergarten Program. Ms. Jenerick is our angel in Christ and has been so supportive of Katelyn during her seizures as school! For the last year Katelyn has been on medication to help stop seizures and at first it was not working well it actually increased her seizures. So in July she began taking two medications and by the grace of God she has had no seizures. Even though she has been seizure free for a few months we never stop thinking about her disease. Every time she goes to bed we listen to see if this will be the time she has another seizure. Katelyn's seizures are very predictable! There is a 70% chance that she will grow out of them and we will not know this until she has passed puberty, but there is a chance she could live with it for the rest of her life.
By you signing this petition it could help fund research to finds ways to not only help Katelyn, but other children as well as adults. There is so much unknown about seizures and epilepsy! Please consider signing. If you check the box you will not receive any other information.
I need to share one thing about what epilepsy has done for our family. It has made our faith grow in Jesus Christ, it has brought our family together, and made us realize that God selected us to be Katelyn and Michaels parents and we are truly blessed. Children our gifts of God no matter if they fit the image of perfection that our society places. I have come to realize that it is the imperfections that make perfection.
http://www.epilepsyfoundation.org/petition/
Many thanks for your support and please continue to help us lead the fight to defeat epilepsy!
Amber